Thursday, April 17, 2014


Every night the kids get a fresh glass of water (in a straw'ed cup) when they go to bed. Hannah drinks a little bit some nights. Zach sucks it all down every night. Some nights he will ask for more, some nights he just goes to sleep.

Tonight, he called out for more water. Last night when he asked for more, he said he would need some water in the morning and that he wouldn't drink it all before he went to sleep. So tonight, he asks for more and I refill his cup and tell him not to drink too much tonight and save some for morning. And he says to me...

"But Mom, you don't want my tummy to dry out, do you?" 

It made me laugh. His justification of it.

Then I started thinking of his IEP last week. And how we discussed how it can be hard to tell if he says things because he knows how to use words appropriately, or if he truly knew what those words mean. So when he said that to me it just made me so happy that he truly understood the words he was using.

And how he knew to use those words. To get his way :) 

Friday, April 11, 2014

Zach - "I Love You"

Tonight Hannah is at a sleepover so because Zach is a little bummed, wishing he were at his own sleepover, I let him stay up late. I was doing some chores and he sat at the table to have a kiwi for snack before bed. And this happened... 

Back sorry: We sign 'I love you' often in our family. Especially around others because not everyone knows what it means so we can do the sign amongst ourselves. Zach can't naturally just throw the sign up the way the rest of us can because fine motor is not his strength, but he certainly knows what it means so he will usually say. "love you" when he sees us signing.

Every now and then he has a moment that you will see him really trying to form his fingers into the sign, or he will ask me if he is doing it right, or he will ask if I will come and help him.

In those moments, I know he is truly feeling love.

Friday, September 6, 2013

As heard...

Before bed tonight, Hannah asked if she could look at pictures in bed on her IPhone (and by "her IPhone" I mean my old one that houses her music, a few non-internet dependent games of hers, and some pictures she has taken). She excitedly goes to lay in bed and I have a glass or three of wine on the couch hanging out and taking pictures of Zach while he is deliriously sleepy and giggly.

After about 30 minutes I check on Hannah and she is almost asleep in her dark room while Little Einstein's Bedtime Lullabies is playing on her IPhone. I went in to give her a kiss goodnight and she looks up and me and this happens...

Hannah: Are there King Cobra's here?

Me: Um, What?

H: Are there King Cobra's here? (at this point I can tell she had heard something at school that clearly sent her mind on a tail spin)

Me: I am not sure

H: Are they only in San Diego?

Instantly I started laughing

Me: Sweetie, that is the most random thing you could have ever said to me. San Diego? Why would you say that? What did you hear about King Cobra's?

H: Why? Have you been to San Diego?

Me: Yes. Many times. I don't think there are King Cobra's there. At least I never saw one.

At this point Chris walks in to give her a goodnight kiss... so I tell him about her concerns and he assures us that they are in India. And Hannah drifts off to sleep.

Tuesday, April 23, 2013

As heard...

Every night at dinner we discuss the best parts of our days and the worst parts of our day. The other night we got to Hannah... she had a couple good parts of her day.. no bad parts and we'd moved on to someone else... then....

Hannah: "Oh! Mom! I have another best part of my day!"

Me: "Oh yeah? What is that?"

H: "For snack today... we had salad. With SARDINES!"

Me: "Oh yeah? Did you like them?"

H: "Yes! They were SOOOOO good"

Me: "Really? Can you tell me about them?'

H: "Yeah. They were like... these square crackers"

Me: "Ooooooh... you mean saltines"

Friday, March 29, 2013

As heard...

Driving along with Zach the other day and he says to me...

"Mom. My mouth wants to sing and my body wants to dance so when I say 'Hit It' you put on 'Call Me Maybe'... OK?!"

Wednesday, March 6, 2013

Parent Teacher Conference

There have been many days in my 8.7 years of parenting that I questioned whether or not I was doing it right. Wondering how bad I was screwing my kids up and running the numbers in my head of how much therapy would cost.

Today was not one of those days.

This afternoon we had Hannah's second trimester parent teacher conference.

Her teacher gushed about what a lovely child she was. She maxed out the report card. Everything was either the top mark she could receive or something they have not yet done evaluations on yet. Because neither Mrs. H, Chris or I had many concerns or pressing issues to discuss, we were chatting at the end of the meeting.

Then Mrs. H made me cry.

She told me about how today she was discussing the poem "Star light star bright first star I see tonight.....". She was asking the students what they would wish for. If they were to walk outside and it was dark and there was one star in the sky... what would they wish for. Kids were saying many predictable things. A new puppy. Candy. Then it was Hannah's turn. She stood up and while waving her hands over all of her classmates said "My wish would be for everybody here to be healthy". I instantly had tears. Mrs. H said she felt the same way when it happened. She was taken aback because in all of her years of teaching, no child had ever said such a thing.

This girl is amazing

Friday, February 22, 2013

Being reminded of why I blog...

Tonight I was reminded why I started blogging. Babies and Down syndrome. I started blogging when Zach was about 2 1/2 and I was pregnant with Hannah. I really wanted to start documenting moments of our lives and thoughts I had and remembering moments of my pregnancy with Hannah.

Finding blogosphere after Zach was born was a huge part of us learning, accepting, grieving, loving, following journeys and finding a whole new world of online friends that reassured me that we were going to be OK. That our family would make it.

This was the kids playing in the playroom tonight. I could over hear them while I did the dishes and I smiled as I could hear them being quietly mischievous. Because it is Friday night.. I was letting them get away with it. Hearing them do all the "typical" things that siblings do together... it warmed my heart.

This, right here, is why I need to keep blogging. To document these little loves. Last night I read Kelle Hampton's birth story of her son. I remember 2+ years ago reading the birth story of Nella. I cried. Every time I read it. I had lost track of her blog, and everyone else including my own, lately. Seeing her beautiful family together reminded me why I love to keep this online diary. I need to get back to it.

I got someone to help me clean off my computer so I should be back in action soon.

Monday, February 18, 2013

The dramatics of a 5 year old...

After tucking Hannah in tonight.. I could still hear her rustling around in her bed and she eventually called for me... I go in her room and she is clearly upset. Not to the point of tears upset... but her bottom lip is out a bit and her face was clearly perturbed about something and looked close to tears.I sit down on the edge of her bed and ask her what the problem is.

"I really don't want to go to school tomorrow mom...... My BEST FRIEND Grace moved and she is gone!"

Me: "oh really? I am so sorry sweetie" (in my head going through the names of the dozens of her friends that I actually know and trying to understand how I don't know the name of her BEST friend Grace!)

"Yeah. She moved to another COUNTRY!"

Me: "Oh really! That is so exciting. Where did she move to?"

"I cant remember the name. Something with a field....    Bakersfield!!

"Oh I am so sorry, That is very, very unfortunate."

"Mom. I am serious"

Me: "I know baby. Me too. That is very sad but think of all you other friends. Good Night."

Monday, September 10, 2012

The rental property tour from hell...

I am WAY behind on this blog. I dont tend to neglect it forever but the 2 children's birthdays, week long epic family vacation, Hannah starting kindergarten and soccer, Chris switching jobs, getting ready to put the house on the market... it is all waiting for me to catch up on. But I had to document this evening.

We had been eyeing this rental in our area and I was thinking about calling on it. I recognized the street name and I emailed a friend who lived on the cul-da-sac and I knew she loved it. She pained pictures of hopscotch and rainbows. Kids of all ages playing happily in the street while the dads shot baskets and the moms sat on their lawns sipping lemonade. Fresh canned goods and hand knit scarves. (I am serious!!... Jenn... back me up)

So I call the lady listed on the ad through the rental agency. She asked me over the phone who exactly would be living in the house. I told her my family - me and my husband and 2 kids. She asked how old the kids are and their genders. Said that she must meet every person that is going to live in the house so we had to bring them to tour the house. Seemed odd but it was a great price and the kitchen boasted tons of storage!

So we set up the time to meet at 6:30. We eat dinner early and I wash the kids up and we head over. I had been telling the kids they  needed to behave and be mellow and not run around, etc. We get there and other than the driveway there wasn't a ton of parking. Chris parks in this little space directly in front of the house. Directly in front of a fire hydrant. He thought it was ok since the curb was not red. I was just trying to rush Hannah while she packed up her toys and put on her flip flops without getting inpatient as Zach is charging towards the door.

The lady greets us at the door and shows us around. The house is empty and of course a big empty house is just asking for kids to run wild. They shouldn't. But they see the open space and just go a little nuts. So they check everything out. The lady showing us the place is really intense. And not at all easy to talk to. So we look around and we end up in the kitchen. I am chasing the kids. Hannah has to go to the bathroom. We look in both of them and there is no toilet paper. She says she just has to go pee so I told her to just air dry and come out. A few minutes later I go to check on her. Of course she had pooped. And was putting her clothes back on. We go to flush. Of course they didn't have the water on so it didn't flush. So I go out and tell the lady who said it was fine.

While I was gone she was asking Chris what we did. The names of the company we worked for? What school the kids went to? Where did the kids go when we were at work? Etc Etc Etc

So as I join in the conversation Hannah wanders through the living room to the front room and she was sitting on the front window behind the sheer curtains. All of a sudden... BAM! The tension rod holding another curtain comes crashing down in the window. At the same time, Zach is hiding in the coat closet and wont come out.

So in order to get out the door I asked what the process was if we wanted to apply. She gave me a 4 page application, one of the pages you had to put your bank account information and get it signed off by the bank. She said to call her when it was ready she would come to our house to pick it up.

Yes. I am serious.

So then we go to leave and she is walking us out the door and Chris says "so... exactly what is the rule with the fire hydrant? Can we park there since it is not red?" and she says ""NO. Actually, it is a ticket able offense!". He apologizes. We leave.

And no... we will not be completing that application!

Thursday, June 7, 2012

Guess who's coming to your party??

Zachary's birthday is coming up and he wanted to invite the kids in his class, and a few close friends, to a party at the gymnastics place. He has a friend named Gracie that is in the 2nd grade class that he integrates into and she also happens to have a brother with Down syndrome so she, of course, adores Zach.

The other day his mom sent me this message on Facebook. I have read it so many times and it just makes my heart happy.  

I have to share. So Zach integrates into Gracie's classroom at least on Thursday's when I'm there to help out during Library and music. Since the modernization will start this summer, they are moving out the music room and have been meeting in Gracie's classroom. So the kids walked from the library to their room and Zach doesn't have a desk so Mrs. U looked around the room and noticed Gracie squealing with delight, almost bouncing out of her chair, with her arms stretched out towards Zach. She directed Zach towards a desk next to Grace and they hugged and were so happy to see each other. Then today when they were lining up, Zach was between the two lines and Mrs. U asked Zach to line up right behind Grace again. She's probably aware that they know each other, I mean Grace doesn't hide her emotions. So Grace started clapping her hands in excitement and they hugged again. It was so super cute b/c as Grace rounded the corner our the door, and as she continued to walk, she bent over almost backwards and looked at Zach all googly-eyed. It was the cutest thing I've seen.

A day or two later I got the RSVP from his mom that Gracie would be at his party. I had a feeling he would be excited so I taped his reaction.

Mom: "Hey Zach... guess who is coming to your party?"

Z: "Umm... Umm... Luke." (his cousin who he has been talking about constantly lately)

 Mom: "No... Gracie"

Excitement... pretty self explanatory :)

Z: "She is invited??"

Mom: "Yeah"

Z: "She got my invitation?... in her mailbox?"


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