If you have not read Part 1, start here.
I woke up the next morning hoping it was all a nightmare. Hoping I would roll over and Chris would be next laying there next to me. But of course the other side of the bed was as empty as it was just a few hours earlier when I laid down. I jumped out of bed and called the ICU nurse who said he was awake already and put me through to him. I could hear in his voice how different he was. It was as if his soul had been missing and overnight had returned to his body. His speech was off, but the gibberish was gone. I took a shower and waited for my mom who went to the hospital with me. When we got there the ultrasound technician was doing ultrasounds of his legs and carotid artery checking for clots. She also came back later in the day and did a very long echo cardiogram of his heart. She told us, unofficially of course, that all looked well but she did notice some fluttering in his heart. Chris was starving. He hadn't eaten anything since 2pm Monday when he had a snack at work. They would not let him eat or drink anything until he met with a speech therapist to evaluate him and ensure that he would not choke or aspirate.
We still did not have a lot of answers as to why this happened. Chris is 37 years old. Has never been a smoker, heavy drinker, or drug user. He plays soccer 2-3 times a week and has always been healthy. When talking to the doctors the night before in the ER about his medical history, diet and eating habits I did mention that he drank energy drinks. Generally 2-3 a day. They seemed very interested in this and felt that could have been a factor in causing his stroke.
We met with the cardiologist who explained that the stroke was caused by Atrial Fibrillation. The irregular heart beat will cause a clot and paired with the amount of caffeine in the energy drinks, it was a formula for disaster. Most people who have A Fib have a heart rate that averages in the 130-150 range. Chris' averages around 60-70 so he had no idea that he was experiencing this. When he was in the hospital in February, they did not ever mention that he was in A Fib so it was a relatively new thing.
There was a lot going on throughout the day. Nurses in and out. A visit from Chris' bosses. Chris had an MRI where they officially confirmed he had a stroke. The neurologist said there was some scarring in his brain. Finally around 3pm or so the speech therapist came in and did some tongue exercises with Chris and watched him eat a milkshake. She cleared him to eat and showed us some exercises that he needed to do to strengthen his tongue to help his speech return to normal. He scarfed down a turkey sandwich (the first of many) and was happy to finally get to eat.
Around 4 that afternoon he was able to get up and try to walk. He felt pretty good but he did feel like he was tilting to one side while he walked. In his mind, he thought it should be obvious that he was tilting, but knew that it wasn't. Our fantastic daycare provider dropped the kids off at the hospital so they could visit with Daddy. After a short visit we went home so I could try to maintain some normalcy for the kids. We had dinner and did our nighttime routine. Chris had a good night. Watched TV. Ate dinner. Walked a little bit more with one of the nurses.
Wednesday morning I dropped the kids off at daycare and went back up to see him. There was talks of moving him to the unit that was just a step down from ICU but they were full so they moved him down to the "Med Surg" floor. It was good and bad. Good because that meant he was one step closer to going home. Bad because it was a cramped room where he would possibly have a roommate. When he was moved around noon, he had a roommate who was in his 80's and hard of hearing. So, you can imagine the volume of his TV. The roommate left around 3 and Chris was lucky enough to be alone in his room until Friday morning. Wednesday was more of the same. The speech therapist came and worked with him again, along with an occupational therapist and a physical therapist.
The cardiologist met with us again. We talked with him about treatment going forward. They put him on blood thinners to avoid the possibility of another clot forming. Because of the tPA that he was given upon arrival they had to start slow with new medications. They started giving him shots of Lovenox in his stomach on Wednesday. This is a faster delivered blood thinner until the Warfarin could get to the appropriate levels in his system.
Chris was able to get up and walk a little bit in the halls. Didn't do too much Wednesday but by Thursday he did a few laps up and down the halls. Thursday was about the same as Wednesday. Meeting with the ST, PT, OT and cardiologist. I think the floor doctor also came in to check on him, but we didn't get much out of him in terms of information. He didn't tell us anything we didn't already know from the nurse or the cardio.
Friday morning Chris was itching to go home and we were doing a lot of walking up and down the hallway. The floor doctor came in to check on him and said he would be there until at least Monday. Since he was getting the shots he had to stay there and they wanted his blood at a certain level before he could leave. We met with the cardiologist around 10am who said that if the insurance approved it and I felt ok giving him the shots we could go home. Chris was so ecstatic! We got all the prescriptions, follow up appointments, and instructions and we were out of there! Chris was so excited to be out of bed and out of the hospital that we actually stopped on the way home and had sushi for lunch before picking up all his drugs.
Understandably, it still took some time for him to regain his energy and get back to doing his day to day activities. Even now, a 6 weeks later, he still tires easily. The cardiologist said that after his Cardioversion this coming Friday, he should notice a huge difference in his stamina and energy level. The cardiologist and neurologist have talked and neither of them are in a rush to get him off of the blood thinners so he will stay on those for awhile. He was back to work part time the following week and on the soccer field 3 1/2 weeks post stroke. He has had lots of follow up appointments and has to have his blood levels checked weekly. We also had to pay some guy $300 to come evaluate Chris and watch him drive so that he could fill out the reports for the Neuro and the DMV to clear him to drive. He wasn't able to drive for a couple weeks and I was hating being the sole driver. He is also not the best passenger so he was anxious to get back in the drivers seat.
It has been a hell of an experience that I do not wish on anyone but I am so thankful for how quickly he has recovered.
5 comments:
Wow that has been some experience, I'm sorry you guys had to go through it at all...but so glad that he seems to be well on the way to a full recovery.
Wow Jen. Thanks for sharing this experience with us. Gosh, I'm so glad that all is okay now and that Chris had a quick recovery. He's so lucky to have you!
Thank you so much for sharing part 2! I was so worried for all of you and beyond glad that it turned out as well as it did! I assume he isn't drinking those energy drinks anymore?
wow, so glad things turned out as they have...but what a scare for all of you! I've actually never had an energy drink...but after this don't even feel compelled to try one, no sir! Hugs to you all!
I'm so glad you shared your story. It just makes want to cry to imagine how awful and heart wrenching it must have been for you.
Hugs to you and your family. I'm so glad he's on the road to recover.
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